June 9th is International Batten Disease Awareness Day. It's an opportunity for those dealing with this horrific, ultrarare condition to share stories, spread awareness, and maybe spur on much ...

Batten disease is a rare group of nervous system disorders called neuronal ceroid lipofuscinosis (NCLs) (or ceroid lipofuscinosis, neuronal: CLN) that get worse over time. It usually starts in ...