pharmaphorum2d
Patient registries and why they are essential for rare diseases
In part three of five articles by Siren Interactive, Eileen O’Brien discusses how important patient registries are for the acceleration of orphan drugs and the awareness of rare diseases ...
pharmaphorum6d
COVID-19 patient registry could inform lockdown exit strategy
Recruitment for a patient registry app for COVID-19 is underway, which could help governments find their way out of lockdown by remote monitoring of symptomatic and asymptomatic patients following ...
TCTMD21d
Patient Reported Outcomes in National Registries: Why and How?
TCT 676: Incidence of Coronary Microvascular Dysfunction in ANOCA Patients With and Without a History of Severe COVID-19 Infection: The COMET-19 Study Receive the the latest news, research, and ...
BMJ2mon
Patient demographic and surgical characteristics in anterior cruciate ligament reconstruction: a description of registries from six countries
but how various registries from different countries compare with different patient populations and surgical techniques has not been described. We sought to describe six ACLR registry cohorts to ...
Health P.E.I. hopes to roll out an 'optimized' patient registry this spring, CEO says
Prince Edward Island’s patient registry is expected to get a significant update by the spring of 2025, but a big cleanup of data in the last few months is already paying off, says Melanie Fraser of ...